기사
Brothers and Sisters of Disabled Children: The Experience of Disability by Association /
- 개인저자
- Burke, Peter
- 수록페이지
- 1681-1699 p.
- 발행일자
- 2010.09.17
- 출판사
- Oxford University Press
초록
[영문]This paper examines the impact of childhood disability on brothers and sisters in the family. Evidence is drawn from two research studies undertaken by the author, mainly within the Yorkshire and Lincolnshire region of the UK, and demonstrates that siblings experience ‘disability by association’ due to the interactive effect of living with a disabled brother or sister. The intent is not to suggest that disability itself is causal in this relationship; rather, it is to improve our understanding of how disability impacts on the family, is reacted to by others in the wider social setting and how, in turn, this impacts on siblings. This research comments on the family experience, utilising both quantitative and qualitative data drawn from 116 families with 344 children, of whom 118 had a disability. The experience of living with a disabled brother or sister is evidenced by both positive and negative effects on the families participating in the research. Themes explored include the nature of siblings caring activities, disadvantage and restrictions, together with a need to inform professional assessments of sibling needs.